A research update for you

Nutrition and recovery after critical illness

Thank you for being part of this research. This newsletter shares what we have learned so far, and invites you to help shape what comes next.

A warm, informal gathering of friends sharing coffee, tea, and pastries around a wooden table
A note from the research team

Thank you for your interest in this research on nutritional recovery after critical illness. Whether you have already taken part in the study or are hearing about the project for the first time, this newsletter shares what we have learned so far and invites you to help shape the next stage of the research.

Thank you to everyone who has taken part in the interview study or shared feedback on the project. Your time and experiences are helping us understand what nutritional recovery after critical illness is really like.

What we have learned so far

Listening to your experiences

Earlier in the project, we reviewed existing research on nutrition after critical illness. This showed that many people experience poor appetite, tiredness, taste changes, nausea, low mood or anxiety, and worries about food, especially in the first year after leaving hospital. Previous research also suggested that nutrition support during this time was limited.

To explore this in more depth, 16 people who had experienced critical illness themselves, or had cared for someone after critical illness, took part in one-to-one interviews. They shared their experiences of eating, recovery, and daily life, and how these changed over time.

16
people shared
their story
4
main messages
came through
1st
year after hospital
feels the hardest

Four things you told us about recovery

Eating can be difficult

Loss of appetite was very common. Food often tasted different, and eating could feel like hard work.

Food can be emotional

For some people food provided comfort to help cope with the memories of being so unwell. Feeling anxious or low, could make eating even harder.

Support makes a big difference

Help from family, friends and dietitians made recovery easier. Feeling understood and supported mattered.

Support was not always available

Most people said they did not receive enough advice about nutrition and often had to figure things out on their own. Some felt nutrition was not seen as important by healthcare staff.

You also had clear ideas about what would help

1
Early access to nutritional advice after leaving hospital
2
Advice that is personal and changes over time
3
Involving family members in nutrition plans and advice
Help shape what comes next

Your voice can help design better support

The next step is to work together to design a nutrition programme for people recovering after critical illness.

We are inviting people with lived experience, carers, and healthcare professionals to take part in a series of online co-design workshops. These workshops are part of patient and public involvement (PPI) which means working with people who have relevant experience to help shape the research.

The ideas developed in the workshops will help design a practical, person-centred nutrition programme and shape a future research study to test it in practice.

June & July 2026 Microsoft Teams 3 workshops, 90 min each Around 12 people
Who can take part

You may be interested if you are…

Someone who has experienced critical illness and recovery after ICU

A family member or carer of someone who was critically ill

A healthcare professional involved in supporting recovery after ICU and hospital discharge

No experience needed. You do not need any research experience to take part. If you are someone with lived experience or a carer, you do not need any medical knowledge or specialist preparation.

We can offer support before the workshops if you are not familiar with the online meeting technology. The group will include around 12 people, with a mix of ICU survivors, family members and healthcare professionals. We are keeping the group small to help create a supportive environment where everyone feels comfortable contributing and has the opportunity to take part meaningfully.

If more than 12 people express an interest, we may not be able to include everyone. We will select people to ensure the group includes a range of experiences and views.

Would you like to get involved?

Read the full participant information sheet to find out more about the workshops. If you are interested in taking part, please email Ella — we would love to hear from you.

Read the participant information sheet Or email Ella directly at 240648@HSU.ac.uk
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Research updates
In February 2026, the findings were also discussed at a London ICU patient support meeting. People told us the findings resonated with their nutritional recovery journeys and again highlighted gaps in support provided to help with eating for recovery.

If you have any feedback on this newsletter, we would be very happy to hear from you. Please email Ella Terblanche on 240648@HSU.ac.uk.

Ella Terblanche
NUTRITION & RECOVERY RESEARCH TEAM